We found out Friday morning from Chemo Oncology...the mutation type was FINALLY found. Of course this mutation they have NEVER seen before, can't find it in any data base. Something about region 19 showing mutations that would be receptive to the oral Tarceva drug, but that region 20 has 2 amino acids that have been "kicked out" therefore they do not think it would respond to the oral meds. This is based on ONE person in the database that had 1 amino acid "kicked out" and this person did not respond well to the oral meds. Therefore the most aggressive chemotherapy cocktail will be used (including the clinical trial drug cetuximab).
Spinal surgeon's office later that same day...not such good news:
The T6 vertebra (below the surgery site) has now begun to collapse as well. I must wear the back brace now until they can either inject it with medical cement or do another surgery with another rod & 2 screws. Either way, we need to get chemo started first. Then they can make a decision when to address the T6 area & how. Now it is critical to keep it supported so it doesn't cause more damage. If it gets worse, it could effect my legs again.
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