6/12 Chemotherapy Begins...

My chemo began yesterday 6/12 and it was a long one. I had premeds saline and  IV Benadryl to get me relaxed and ready for the aggressive drugs  to be administered.  It began with Taxol and after completing, was told from the nurse that we didn't have enough time  to complete the whole protocol of chemo drugs.  Still freshly frustrated and diappointed from the recent messups from the different facilities I've had to work with, we didn't have any reservations about letting them know we didn't have any more days to waste and that something needed done was gonna have to happen today.  A few calls were made on my behalf to get things expedited and it was affirmed that we were going to proceed with treatment of Carboplatin & Avastin minus the Cetuxamab that would have required about 4 hours to complete, which we needed to be there at 10:00 am the next morning to get done.  I was able to keep my pain more managed and got a good nights sleep. 

6/7 FINALLY test results & visit to Spinal Neurosurgeon

We found out Friday morning from  Chemo Oncology...the mutation type was FINALLY found.  Of course this mutation they have NEVER seen before, can't find it in any data base.  Something about region 19 showing mutations that would be receptive to the oral Tarceva drug, but that region 20 has 2 amino acids that have been "kicked out" therefore they do not think it would respond to the oral meds.  This is based on ONE person in the database that had 1 amino acid "kicked out" and this person did not respond well to the oral meds.  Therefore the most aggressive chemotherapy cocktail will be used (including the clinical trial drug cetuximab).

Spinal surgeon's office later that same day...not such good news:

The T6 vertebra (below the surgery site) has now begun to collapse as well.  I must wear the back brace now until they can either inject it with medical cement or do another surgery with another rod & 2 screws.  Either way, we need to get chemo started first. Then they can make a decision when to address the T6 area & how.  Now it is critical to keep it supported so it doesn't cause more damage.  If it gets worse, it could effect my legs again.

4th Biopsy, still waiting. Radiation begins.

I finished my 10th & final session of radiation on the T6-T9 areas of the spine & my left hip. I feel so much more relief overall in the lower body but the lung incisions and the surgical area where the initial vertebral tumor was removed remains sensitive and often times painful. It is taking a little longer to heal in those areas, and that is why I am holding on to the belief is the reason for the delays in getting the results back from this last of 4 biopsies. The delay is giving my body time to heal itself , and is slowly but surely. I take charge of my own innate power to heal my own body, cell by single cell. It is happening ! Feel my excitement for these things to happen because it is. These lab results will give me the answer as to what direction to take next for chemotherapy. We are hoping to qualify to being able to take the once a day pill that will require no chemo, but if it is necessary , we will go at the cancer with the most aggressive form and risk all the side effects involving nausea,fatigue,vomiting, and of course hair loss. I pray to be able to take the once a day pill. In the meantime, I prepare for tomorrow's CT scan at UCSD Hillcrest , an appointment with my spinal surgeon on Friday , and an MRI over the weekend on Sunday. It will be very busy for me the next few weeks as I plan to prepare for the worst of the chemotherapy. Please send me some Healing Energy as I will need it, every little bit. I am best prepared mentally and physically as can be but will need to draw from really deep within the Essence that will get me to the purest of Recovery. The Love and sense of Motivation continues to vibrantly exist inside me but it needs to truly manifest and reveal as I face this upcoming challenge . I am confident they will have the results in the next couple days so that this part of the waiting can lead to more essential information as this next couple of body and brain scans will tell us more. It is a very scary time currently, not only within my World but the entire World in general, and for that I pray for Peace and Harmony, and Health to all Mankind.